Survey Launch: Amplifying the Voices of People Living with Psychosis in Ireland

Survey Launch: Amplifying the Voices of People Living with Psychosis in Ireland

Shine, in collaboration with Mental Health Reform and the HSE National Clinical Programme for Early Intervention in Psychosis (EIP), has today launched the 2025 National Survey of the Experiences of People Living with Psychosis in Ireland.

In Ireland’s national conversations on mental health, the voice of those living with psychosis and their families remains under-represented and often unheard. This annual survey aims to address that silence, highlighting real experiences and driving evidence-based advocacy for better services and greater understanding.

“People who experience psychosis face unique challenges, not only in accessing the right supports, but also in overcoming the stigma and fear that surround the condition,” said Nicola Byrne, CEO of Shine. “Psychosis is still too often a stigmatised experience, one that people are afraid to speak about. By listening directly to those with lived experience, we can push for the systemic change that’s long overdue; more specialist services, earlier intervention, and real investment in recovery.”

International evidence consistently demonstrates that people experiencing psychosis benefit most from dedicated, specialist supports. Early intervention and recovery-focused care are linked to improved outcomes, reduced hospital admissions, and better long-term wellbeing.

Dr Karen O’Connor, National Clinical Lead for Early Intervention in Psychosis (EIP), welcomed the continuation of this national research, saying: “We know that early access to evidence-based psychosis care can transform lives. This survey helps us understand where we are succeeding and where gaps still exist. Expanding Early Intervention in Psychosis teams and services nationwide is essential if we are to provide equitable, high quality care for everyone who needs it.”

Wendy Mitchell, Head of Operations at Mental Health Reform, added: “This research provides vital evidence that must inform government priorities. The findings underline the importance of investment in the voluntary and community sector, which provides frontline support to individuals and families. These organisations need secure and sustainable funding to continue delivering critical, person-centred supports across Ireland.”

The 2025 survey will gather first-hand accounts from people with lived experience of psychosis and their families. Findings will be used to inform national policy, shape advocacy priorities, and call for increased funding and equitable access to specialist psychosis supports.

The 2024 survey identified the following key priorities for action:

• Expanding Early Intervention in Psychosis (EIP) services nationally.
• Developing dedicated crisis support options beyond emergency departments.
• Increasing funding and staffing for both statutory and community based mental health services.
• Strengthening efforts to challenge stigma and improve public understanding of psychosis.

Shine invites people with lived experience of psychosis and their families or supporters to take part in the 2025 National Psychosis Survey by clicking on the link: https://forms.office.com/e/T0Hcq8uhxT